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Child Life…a gratitude letter

On September 23rd, 2019 my six year old son, Kane, underwent his second open heart surgery at the Stollery Children’s Hospital in Edmonton, Alberta. In the months leading up to Kane’s surgery, I kept struggling with two challenging thoughts… I was really concerned with how different this surgery would be than Kane’s first heart surgery when he wasContinue reading “Child Life…a gratitude letter”

Real Life

Bucket filled! This week I got to spend time with an amazing group of photographers at the Real Life Conference in Portland, while at the same time I was the guest moderator for Documentary Family Photogs on Instagram. Both of these opportunities provided a ton of learning and I have so many ideas moving forward. EachContinue reading “Real Life”

Together – Heart Warrior

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”

Heart Surgery

Last week was hard. Even with all of the love and support we had surrounding us. It was hard. When Kane was first born and we learned he had congenital scoliosis and congenital heart defects, I believed surgery meant solving a problem. Six years later, I don’t see it that way anymore. First I wantContinue reading “Heart Surgery”

CHD Dad

This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”

The What If Monster

5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “The What If Monster”

Surgery Date

I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “Surgery Date”

The Stories We Live – CHD

This week has been a roller coaster of emotions…Last Friday, during my “Yes Day”, I spent some time reflecting on what’s been going on for us recently and ended up writing for this week’s blog. Below is what I wrote one week ago. I find the days leading up to one of Kane’s big medicalContinue reading “The Stories We Live – CHD”

Flourish After a Suicide

Today is World Suicide Prevention Day and would have been my dad’s 60th birthday. My dad died by suicide in January of 2015. My life was forever changed by suicide that January, though my family was not able to openly talk about suicide until we received the coroner’s final decision in March 2016. I don’tContinue reading “Flourish After a Suicide”