Hello, Alberta Children's Hospital

Last week was Kane’s first cardiology appointment at the Alberta Children’s Hospital in Calgary. We have been regular attendees at the Stollery Children’s Hospital in Edmonton for the last 7 years, but with our move to Canmore comes a new hospital and a lot of new learning. So we brought our cameras and headed overContinue reading “Hello, Alberta Children's Hospital”

Together – Heart Warrior

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”

Heart Surgery

Last week was hard. Even with all of the love and support we had surrounding us. It was hard. When Kane was first born and we learned he had congenital scoliosis and congenital heart defects, I believed surgery meant solving a problem. Six years later, I don’t see it that way anymore. First I wantContinue reading “Heart Surgery”

CHD Dad

This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”

I'm Ready, What's Next – The What If Monster

5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “I'm Ready, What's Next – The What If Monster”

I'm Ready, What's Next – Surgery Date

I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “I'm Ready, What's Next – Surgery Date”

Together

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have struggled with the fact that it is not just my story to tell. Together is a project aboutContinue reading “Together”

Telling Our Story

Thursday was Kane’s cardiology appointment. As many of you know, I tend to get a little worked up before this appointment. But not this time! This time I have had so many “shiny” things happening, related to both education and photography that I didn’t even have a chance to freak out. One of those shinyContinue reading “Telling Our Story”

The Stories We Live – CHD

This week has been a roller coaster of emotions…Last Friday, during my “Yes Day”, I spent some time reflecting on what’s been going on for us recently and ended up writing for this week’s blog. Below is what I wrote one week ago. I find the days leading up to one of Kane’s big medicalContinue reading “The Stories We Live – CHD”

This is Us – CHD

This week, Kane was at the Stollery Children’s Hospital two different times for his bi-annual cardiology appointment. On Monday, Harrison took Kane for his echo and then on Thursday I took him back again for his ECG and his appointment with his cardiologist. There are so many things I love about the Stollery. My favouriteContinue reading “This is Us – CHD”