CT Story

Waiting…Kane and I are experts at waiting. Waiting at an appointment. Waiting for an answer. Waiting to play a game (because mom won’t let you have screen time the majority of the time you are waiting!) We are pretty good at bringing things to do while we are waiting. For me, it’s my camera. ThisContinue reading “CT Story”

Just Another Day

Life with a medical kid is interesting. There are times where our family is pretty normal, well, you know, as normal as any family is! And then there are times where it feels like the medical appointments and discussions about challenges and where to go next take over. We are in that right now. InContinue reading “Just Another Day”

Why Medical Families?

This is me…well, the me of 4 years ago. This is also me…a more recent version of me. I am a medical mom. I am an advocate. I am a storytelling photographer. I share the story of our lives.Partly, so our family can see us.Partly, so other families can see themselves.But mostly for me, becauseContinue reading “Why Medical Families?”

Hello, Alberta Children’s Hospital

Last week was Kane’s first cardiology appointment at the Alberta Children’s Hospital in Calgary. We have been regular attendees at the Stollery Children’s Hospital in Edmonton for the last 7 years, but with our move to Canmore comes a new hospital and a lot of new learning. So we brought our cameras and headed overContinue reading “Hello, Alberta Children’s Hospital”

Together – Heart Warrior

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”

Heart Surgery

Last week was hard. Even with all of the love and support we had surrounding us. It was hard. When Kane was first born and we learned he had congenital scoliosis and congenital heart defects, I believed surgery meant solving a problem. Six years later, I don’t see it that way anymore. First I wantContinue reading “Heart Surgery”

CHD Dad

This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”

The What If Monster

5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “The What If Monster”

Surgery Date

I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “Surgery Date”

Together

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have struggled with the fact that it is not just my story to tell. Together is a project aboutContinue reading “Together”