I'm Ready What's Next – #ChildHealthCan2019

I’m still in the process of organizing all of my thoughts after attending the Children’s Healthcare Canada Conference in Ottawa earlier this week, but I wanted to begin to share what I have been thinking about. A few weeks ago, I was invited to attend this conference by the Stollery Children’s Hospital Family Centred Care Network.Continue reading “I'm Ready What's Next – #ChildHealthCan2019”

Child Life…a gratitude letter

On September 23rd, 2019 my six year old son, Kane, underwent his second open heart surgery at the Stollery Children’s Hospital in Edmonton, Alberta. In the months leading up to Kane’s surgery, I kept struggling with two challenging thoughts… I was really concerned with how different this surgery would be than Kane’s first heart surgery when he wasContinue reading “Child Life…a gratitude letter”

Iron Kane

Last Thursday, Kane and I were in Edmonton for an appointment with his cardiologist followed by our first pacemaker clinic. Turns out the electrophysiologist (pacemaker doc) involved with our case is actually our new neighbour in Canmore…just another interesting coincidence! Three weeks post surgery and things with Kane’s heart are looking good and we areContinue reading “Iron Kane”

Together – Heart Warrior

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”

CHD Dad

This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”

I'm Ready, What's Next – The What If Monster

5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “I'm Ready, What's Next – The What If Monster”

I'm Ready, What's Next – Surgery Date

I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “I'm Ready, What's Next – Surgery Date”

I'm Ready, What's Next – Ode to the Stollery

One of the hardest things about leaving Edmonton is moving away from the Stollery Children’s Hospital. The Stollery Children’s Hospital and the Stollery Children’s Hospital Foundation have had an enormous impact on our family.  We have used their services for both of our kids. Everything from fetal echocardiograms to open heart surgery to 3D echocardiogramsContinue reading “I'm Ready, What's Next – Ode to the Stollery”

Together

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have struggled with the fact that it is not just my story to tell. Together is a project aboutContinue reading “Together”

Telling Our Story

Thursday was Kane’s cardiology appointment. As many of you know, I tend to get a little worked up before this appointment. But not this time! This time I have had so many “shiny” things happening, related to both education and photography that I didn’t even have a chance to freak out. One of those shinyContinue reading “Telling Our Story”