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It’s Been a Week…

It’s been a week. We wait. We watch. We photograph. We talk. We find ways to connect with other kids, families, child life specialists, medical staff and researchers to continue to make the best of what life hands us. I don’t know about your family, but it always seems to me that we are chuggingContinue reading “It’s Been a Week…”

I Was There Too: #TuckerStrong

I Was There Too is a series of conversations I am having with photographers and medical families who are telling stories of life (and sometimes death) for families with medical complexities. Meet Mark and Megan Hewson. And their son, Tucker. I happened to meet Mark and Megan at the Treasure Life beads table outside theContinue reading “I Was There Too: #TuckerStrong”

I Was There Too: Judy Dahl

I Was There Too is (usually) a series of conversations I am having with photographers and medical moms who are telling stories of life for families with medical complexities. This week, in honour of Heart Day and CHD awareness week I chatted with the Child Life Specialist who supported Kane and our family during hisContinue reading “I Was There Too: Judy Dahl”

Tell Your Story: Sharing My Heart

Sharing your story is something each and every one of us can do. You can do it for yourself. You can do it to educate or inform others. However you choose to tell your story, just the act of telling it can help you to heal. I tell our story with my camera. The dayContinue reading “Tell Your Story: Sharing My Heart”

#ChildHealthCan2019

I’m still in the process of organizing all of my thoughts after attending the Children’s Healthcare Canada Conference in Ottawa earlier this week, but I wanted to begin to share what I have been thinking about. A few weeks ago, I was invited to attend this conference by the Stollery Children’s Hospital Family Centred Care Network.Continue reading “#ChildHealthCan2019”

Child Life…a gratitude letter

On September 23rd, 2019 my six year old son, Kane, underwent his second open heart surgery at the Stollery Children’s Hospital in Edmonton, Alberta. In the months leading up to Kane’s surgery, I kept struggling with two challenging thoughts… I was really concerned with how different this surgery would be than Kane’s first heart surgery when he wasContinue reading “Child Life…a gratitude letter”

Iron Kane

Last Thursday, Kane and I were in Edmonton for an appointment with his cardiologist followed by our first pacemaker clinic. Turns out the electrophysiologist (pacemaker doc) involved with our case is actually our new neighbour in Canmore…just another interesting coincidence! Three weeks post surgery and things with Kane’s heart are looking good and we areContinue reading “Iron Kane”

Together – Heart Warrior

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”

CHD Dad

This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”

The What If Monster

5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “The What If Monster”