Last week was hard.
Even with all of the love and support we had surrounding us. It was hard.
When Kane was first born and we learned he had congenital scoliosis and congenital heart defects, I believed surgery meant solving a problem.
Six years later, I don’t see it that way anymore. First I want to be clear. This change of heart is not in any way a reflection on our surgeons. Surgery is complicated and each little person is unique. There is no doubt in my mind that everyone who has ever worked with Kane is doing their absolute best. But the fact of the matter is, surgery is risky. And although we are all hoping for the best possible outcome, nothing is guaranteed.
Iron Kane now has a permanent pacemaker. He also has a hole in his heart. And the more I think about it, the more heartbroken I am.
I will write about it and I will talk about it. And then I will wipe away my tears, tell myself that I am a warrior, and keep on going. Because that’s what Kane would do.
But here’s my takeaway, because I expect the Wolfe Pack Warriors shirts will be donned again. The next time a surgeon debriefs us after surgery, I will clearly say “Thank you for what you have done for our son. Please provide us with all of the important details about the surgery. We trust you to make decisions about Kane’s care, but we also need all the information.”
We are forever grateful to the staff of the Stollery. There are times when our emotions win, when we are exhausted and overwhelmed, but we have to be informed.