Iron Kane

Last Thursday, Kane and I were in Edmonton for an appointment with his cardiologist followed by our first pacemaker clinic. Turns out the electrophysiologist (pacemaker doc) involved with our case is actually our new neighbour in Canmore…just another interesting coincidence! Three weeks post surgery and things with Kane’s heart are looking good and we areContinue reading “Iron Kane”

Click with Kids: Photo Booth

Click with Kids Project #2 For this month’s edition of my educational photography newsletter, Click with Kids, I decided our project needed to be a little more fun after all the heavy stuff we’ve been dealing with lately. So the boys and I set up a photo booth style shoot using… And they were so freakin’Continue reading “Click with Kids: Photo Booth”

Together – Heart Warrior

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”

Heart Surgery

Last week was hard. Even with all of the love and support we had surrounding us. It was hard. When Kane was first born and we learned he had congenital scoliosis and congenital heart defects, I believed surgery meant solving a problem. Six years later, I don’t see it that way anymore. First I wantContinue reading “Heart Surgery”

CHD Dad

This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”

Together

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have struggled with the fact that it is not just my story to tell. Together is a project aboutContinue reading “Together”

Telling Our Story

Thursday was Kane’s cardiology appointment. As many of you know, I tend to get a little worked up before this appointment. But not this time! This time I have had so many “shiny” things happening, related to both education and photography that I didn’t even have a chance to freak out. One of those shinyContinue reading “Telling Our Story”

The Stories We Live – CHD

This week has been a roller coaster of emotions…Last Friday, during my “Yes Day”, I spent some time reflecting on what’s been going on for us recently and ended up writing for this week’s blog. Below is what I wrote one week ago. I find the days leading up to one of Kane’s big medicalContinue reading “The Stories We Live – CHD”

This is Us – CHD

This week, Kane was at the Stollery Children’s Hospital two different times for his bi-annual cardiology appointment. On Monday, Harrison took Kane for his echo and then on Thursday I took him back again for his ECG and his appointment with his cardiologist. There are so many things I love about the Stollery. My favouriteContinue reading “This is Us – CHD”

Moments that Matter – Hospital Life

It should come as no surprise that I was more than a little disappointed to be told that I could not take photographs in any space other than the public waiting area when we went for Kane’s MRI. So here is a small slice of what Kane’s MRI experience was like from the point ofContinue reading “Moments that Matter – Hospital Life”