Last week was hard. Even with all of the love and support we had surrounding us. It was hard. When Kane was first born and we learned he had congenital scoliosis and congenital heart defects, I believed surgery meant solving a problem. Six years later, I don’t see it that way anymore. First I wantContinue reading “Heart Surgery”
Tag Archives: Congenital Heart Disease
CHD Dad
This is my rock. He has been there for me every time I have needed him. He deals in my particular brand of crazy unbelievably well. Friday is Harrison’s birthday. And as you have probably gathered from social media, we are still in hospital with Kane. On Thursday, Kane had a pacemaker inserted. This isContinue reading “CHD Dad”
The What If Monster
5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “The What If Monster”
Surgery Date
I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “Surgery Date”
Ode to the Stollery
One of the hardest things about leaving Edmonton is moving away from the Stollery Children’s Hospital. The Stollery Children’s Hospital and the Stollery Children’s Hospital Foundation have had an enormous impact on our family. We have used their services for both of our kids. Everything from fetal echocardiograms to open heart surgery to 3D echocardiogramsContinue reading “Ode to the Stollery”
Together
Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have struggled with the fact that it is not just my story to tell. Together is a project aboutContinue reading “Together”
My Heart Warrior
I can’t think of a better way to ring in 2014 than by bringing my thirteen month old son, Kane, home from the hospital. We were discharged from the Stollery Children’s Hospital on December 31st, just in time for a New Years celebration! Kane was admitted to the Stollery on Friday, December 27th for openContinue reading “My Heart Warrior”