The What If Monster

5am Saturday – 31 hours until Kane’s heart surgery I can’t sleep. I think about if I’m getting sick. I think about my to do list. I think about whether I have connected with everyone I need to about the 6000 things that we have on the go right now. I think about whether IContinue reading “The What If Monster”

Surgery Date

I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “Surgery Date”

Telling Our Story

Thursday was Kane’s cardiology appointment. As many of you know, I tend to get a little worked up before this appointment. But not this time! This time I have had so many “shiny” things happening, related to both education and photography that I didn’t even have a chance to freak out. One of those shinyContinue reading “Telling Our Story”

Voluntography – Special Edition

Meet Khai. Khai loves to play peek-a-boo and according to his mom, Julia, and his grandma, Kathy, he’s pretty fly for a small guy! This little warrior turned one on February 10th. And his first year has not been so easy. When I shoot for a family staying at Ronald McDonald House I send myContinue reading “Voluntography – Special Edition”

The Stories We Live – CHD

This week has been a roller coaster of emotions…Last Friday, during my “Yes Day”, I spent some time reflecting on what’s been going on for us recently and ended up writing for this week’s blog. Below is what I wrote one week ago. I find the days leading up to one of Kane’s big medicalContinue reading “The Stories We Live – CHD”

This is Us – CHD

This week, Kane was at the Stollery Children’s Hospital two different times for his bi-annual cardiology appointment. On Monday, Harrison took Kane for his echo and then on Thursday I took him back again for his ECG and his appointment with his cardiologist. There are so many things I love about the Stollery. My favouriteContinue reading “This is Us – CHD”