Surgery Date

I had just finished writing my Ode to the Stollery blog post when we got confirmation of Kane’s heart surgery date. Kane will be having his second open heart surgery on Monday, September 23rd. We will be at the Stollery Children’s Hospital for pre-admission clinic on Friday the 21st. This is good news, because theContinue reading “Surgery Date”

Together

Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have struggled with the fact that it is not just my story to tell. Together is a project aboutContinue reading “Together”

Telling Our Story

Thursday was Kane’s cardiology appointment. As many of you know, I tend to get a little worked up before this appointment. But not this time! This time I have had so many “shiny” things happening, related to both education and photography that I didn’t even have a chance to freak out. One of those shinyContinue reading “Telling Our Story”

The Stories We Live – CHD

This week has been a roller coaster of emotions…Last Friday, during my “Yes Day”, I spent some time reflecting on what’s been going on for us recently and ended up writing for this week’s blog. Below is what I wrote one week ago. I find the days leading up to one of Kane’s big medicalContinue reading “The Stories We Live – CHD”

This is Us – CHD

This week, Kane was at the Stollery Children’s Hospital two different times for his bi-annual cardiology appointment. On Monday, Harrison took Kane for his echo and then on Thursday I took him back again for his ECG and his appointment with his cardiologist. There are so many things I love about the Stollery. My favouriteContinue reading “This is Us – CHD”

Moments that Matter – Hospital Life

It should come as no surprise that I was more than a little disappointed to be told that I could not take photographs in any space other than the public waiting area when we went for Kane’s MRI. So here is a small slice of what Kane’s MRI experience was like from the point ofContinue reading “Moments that Matter – Hospital Life”

One Way to Kick-off 2015

So, Maverick had to try and one up his big brother, Kane, by getting admitted to hospital at Christmas, too. His claim to fame is being the first of the time-traveling twins to get an isolation room in the Pediatric Intensive Care Unit (PICU) at the Stollery Children’s Hospital. On Sunday, we brought Maverick intoContinue reading “One Way to Kick-off 2015”

My Heart Warrior

I can’t think of a better way to ring in 2014 than by bringing my thirteen month old son, Kane, home from the hospital. We were discharged from the Stollery Children’s Hospital on December 31st, just in time for a New Years celebration! Kane was admitted to the Stollery on Friday, December 27th for openContinue reading “My Heart Warrior”