In a world where healthcare often seems impersonal and daunting, the art of storytelling emerges as a powerful means to bridge the gap between patients and providers, offering a sense of humanity amidst clinical settings. The latest episode of our podcast presents an enlightening conversation with Vittorio Borrelli, a man whose life is a testamentContinue reading “Leading Through Stories: Storytelling in Congenital Heart Disease Care”
Tag Archives: Congenital Heart Disease
Leading Through Stories: When Your World Stops
Digital storytelling is a powerful tool in the realm of health and wellness. It allows individuals to capture and share their experiences in a deeply emotional and engaging way. This was the focus of our recent podcast episode where we sat down with Jennifer, a congenital heart parent and advocate. Jennifer shared her journey withContinue reading “Leading Through Stories: When Your World Stops”
Voluntography – February 2018
Earlier this week someone asked me how I got involved in storytelling and photography. I explained how photographing my son, Kane, in the NICU and throughout the early part of our lives as a family was a way for me to process what was going on. It was also what led me to volunteer asContinue reading “Voluntography – February 2018”
Essential Medical Appointments
Once it became clear just how important physical distancing and flattening the curve were to curbing the spread of COVID-19 many of my son Kane’s medical and dental appointments were cancelled. The first to get bumped was a neuro-developmental assessment. Then we got a call from Kane’s pediatric dentist office saying his dental surgery wasContinue reading “Essential Medical Appointments”
Happy Heart Day
Here’s the photography project invitation I sent out on Facebook recently. I have a photography project I want you or your kids to do with me… It’s called the Paper Heart Project and I’ve included a link to the article where I learned about it. But it’s pretty simple really. 1) make a paper heartContinue reading “Happy Heart Day”
Just Another Day
Life with a medical kid is interesting. There are times where our family is pretty normal, well, you know, as normal as any family is! And then there are times where it feels like the medical appointments and discussions about challenges and where to go next take over. We are in that right now. InContinue reading “Just Another Day”
Hello, Alberta Children’s Hospital
Last week was Kane’s first cardiology appointment at the Alberta Children’s Hospital in Calgary. We have been regular attendees at the Stollery Children’s Hospital in Edmonton for the last 7 years, but with our move to Canmore comes a new hospital and a lot of new learning. So we brought our cameras and headed overContinue reading “Hello, Alberta Children’s Hospital”
Child Life…a gratitude letter
On September 23rd, 2019 my six year old son, Kane, underwent his second open heart surgery at the Stollery Children’s Hospital in Edmonton, Alberta. In the months leading up to Kane’s surgery, I kept struggling with two challenging thoughts… I was really concerned with how different this surgery would be than Kane’s first heart surgery when he wasContinue reading “Child Life…a gratitude letter”
Iron Kane
Last Thursday, Kane and I were in Edmonton for an appointment with his cardiologist followed by our first pacemaker clinic. Turns out the electrophysiologist (pacemaker doc) involved with our case is actually our new neighbour in Canmore…just another interesting coincidence! Three weeks post surgery and things with Kane’s heart are looking good and we areContinue reading “Iron Kane”
Together – Heart Warrior
Together is a photography project in collaboration with my 6 year old heart warrior, Kane. Throughout Kane’s life I have photographed his medical journey and written from my perspective, but as he has gotten older I have felt it is not just my story to tell. Together is a diptych project involving both my perspective and Kane’s perspective. OneContinue reading “Together – Heart Warrior”