I was lucky enough to meet Zedekiah and his parents, Robin and Chris, this past week when the Madden DeLuca Foundation asked me to photograph a first birthday celebration at the Stollery Children’s Hospital.
Zekediah has been in hospital for three quarters of his life; this most recent stint has lasted since October. His mom, Robin has been staying at Ronald McDonald House, while Dad flies in from Regina each weekend.
When I met Zedekiah, he was ten days post heart surgery, but you wouldn’t know it by looking at him!
So you have an idea what this family has been through over the last year, I have included an excerpt from a recent post on Zedekiah’s Facebook page; For The Love Of Zedekiah and Diaphragmatic Hernia Awareness.
“One year ago, our doctor in Regina offered us compassionate care for our coming baby…..the baby survived (born in Edmonton). Through out the year, Zedekiah survived a blood transfusion that should have killed him. He survived chronic wet lungs and many days on Cpap and the ventilator. He survived anemia with extremely low hemoglobin. He survived many viruses, such as adenovirus, Enterobacter, rhino, rota, and Norwalk. Zedekiah survived ECMO!!! Test after test, scans, pokes, surgeries, Zedekiah is still here 1 year later! With a smile on his face and a love and peace in his eyes!”
I love the interaction between Zedekiah and his parents. Don’t get me wrong, he definitely hammed it up for the camera, but there were also so many beautiful shots of him looking up at them both.
This little boy and his parents brightened up my day and reminded me, yet again, how lucky we are to live in a city with a world class children’s hospital. To learn more about Zedekiah and his journey, check out his Facebook page.
HAPPY BIRTHDAY, ZEDEKIAH!